A survivor of the contaminated blood scandal that infected dozens of children with HIV has told Sky News he hopes to find out why “no one told us we were injecting death” as an inquiry into what happened continues.
Ade Goodyear suffered from severe haemophilia as a child and was sent to the Lord Mayor Treloar College in Hampshire at the age of nine in 1980, as it had a specialist NHS centre.
The school gave him a new treatment called Factor VIII/IX, which had first been made available just a few years earlier.
But at the age of 15 – in 1985 – he was taken into a room with four other pupils and told the blood plasma used in the treatment had been wrongly infected with HIV and hepatitis.
“The doctor lifted up his hand and said – you have – you haven’t – you have – got HIV,” he told Sky News.
“There were tears in all their eyes, the doctors and staff.
“My friend to my right said ‘how long have we got?’ and he said ‘we’ll do our best but we think two to three years at the absolute most’.
“I’m the last remaining survivor from that room. They’ve all died.”
On Monday, an inquiry into the contaminated blood scandal, which killed at least 72 haemophiliacs at the college, began hearing evidence from people associated with the school.
Former pupils and parents of those whose children died are giving their accounts of what happened.
Asked what he wants to come from the inquiry, Mr Goodyear said: “Just answers. Why on earth they carried on treating us with Factor, with no conversations with our parents.
“Nobody stopped that. You cannot put children in beds and give them treatment and not tell them the dangers of that treatment. No one told us we were injecting death.”
Treloar’s specialist haemophiliac centre was run separately to the school by the NHS.
They treated 122 pupils with blood disorders between 1974 and 1987 – only 32 of whom are still alive today – with most dying from HIV or hepatitis.
The Factor VIII drug was imported from the US, with batches becoming infected with both viruses.
Mr Goodyear lost his two brothers as a result of Factor. Jason died of AIDS in 1997 and Gary from health problems related to hepatitis C in 2016.
Describing it as “extremely difficult”, he said that he suffers from “lifeboat syndrome” and the “guilt of ‘why am I still alive?'”.
“I am so lucky that I have medications now,” he said.
“But I watched so many people die. I stopped the count at 40 and that was just at Trealoar’s.”
Mr Goodyear says he believed he would be dead by 20.
“It was all over the media. We knew what was happening in America and the factor came from America,” he said.
“The plague as they called it. There were no two ways about it, we were going to die.”
Treloar’s said in a statement: “Although no-one has at any point suggested that Treloar’s was at fault, it is a tragic part of our past.
“It was, and still is, a very difficult time for our affected alumni, their families and staff who were here at the point.”
The hearings continue.