There are over 40,000 more people with muscle wasting conditions in the UK than previously thought, according to a new study.
Until recently, the estimate was thought to be 70,000 but research suggests the figure is in fact around 110,000.
Life expectancy for people with muscular dystrophy was also found to be higher than in previous studies.
Muscular dystrophy is a progressive, incurable condition which can lead to significant physical disability.
Some types can eventually become life threatening when the condition affects the heart or muscles for breathing.
Dr Iain Carey, from St George’s, University of London, used millions of GP records from 2000 to 2019 to carry out the study.
“A rise in prevalence among older age groups suggests that some of these conditions are more common within an ageing population,” he said.
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Dr Carey also stressed the importance of health and social care teams being made aware of the new estimate.
Muscular Dystrophy UK believes the findings could be vital for funding decisions and that it shows the condition is as common as Parkinson’s and multiple sclerosis.
“No wonder neuromuscular specialist services are so stretched,” said Catherine Woodhead, the charity’s chief executive.
“They already work tirelessly to meet the complex needs of people with muscle wasting conditions and this research shows clearly that they need further resources. This growing population cannot be left behind.”
Ms Woodhead said the government’s rare diseases framework acknowledges the impacts on education, financial stability, mobility and mental health faced by those with muscular dystrophy.
However, she is calling for more support for the NHS to meet the growing demand.
The study, which was funded by Muscular Dystrophy UK, was published in the journal PLOS ONE.